Life as an Extreme Sport

Chancellor

I wrote this about a friend back in June 2004. In some ways it’s one of those “life got in our way” things, and in others it’s specific people – his fiance, my husband. In the end, though, it boils down to someone I was very close to, spending hours a day talking to, suddenly moving himself out of my life as much as he could manage – and doing it without warning. Sort of an on-going story in my life, isn’t it?

even without their holy circle
the magpies work their mourning song
nature holds time in her carnival
and the intolerable sweetness of water
glasses ground to dust

so tell me Chancellor
are we ready for dinner?
have the knives been bled?
and tell me Chancellor
who will guard your sleeping form?
from the assassins hiding under your bed

since we do or did – there
was a time was there when
Borgia’s Pass wrapped around me
i hate rabbits said in threes; looking up
like smoke you blew away from me

so tell me Chancellor
are we ready for dinner?
have the knives been bled?
and tell me Chancellor
who will guard your sleeping form?
from the assassins hiding under your bed

whose secret police are we running from
into whose arms do we run
the walls bleed blue
with pestilence hands, mildewed
reaching (as we)
run

Finding Miscellanea

Having my logic board fail reinforced the idea that having backups of everything is good, and while I’m going to work on CD or DVD backups of my data, I’m also going to work on having online backups – largely this website. It’s externally hosted, redundantly backed up…

Which means, practically speaking, there will be a lot of new content coming up the next few days. So I hope you enjoy – or duck.

Boysenberries

Whomever said that food tastes better if you pick it yourself has obviously never picked boysenberries. What the hell? They have thorns! Big thorns! Thorns that fight back! I thought berries wanted to be eaten, so that the seeds ended up moving around? These berries were like “ohnoyoudinnit!” with their sharp thorniness. It was a declaration of war. I kept picking berries even after I’d finished filling the buckets I had; I ate them, put them in other people’s buckets, left them for the birds. It was war, bitches – war, and I wasn’t leaving until there were none left. It was like our Iraqi strategy – only I actually had a strategy, and I won.

[The Daily] – The Right to Life

The Right to Life
2006-07-05

So here’s a question for you to mull over: When were you old enough to make your own decisions?

Chances are you were pretty young when you figured out you didn’t like the taste of broccoli. And you probably weren’t old enough the first time getting drunk sounded like a good idea.

Now ask yourself this: At what age were you old enough to make your own medical decisions?

You were probably old enough to know what you wanted or didn’t want, medically speaking, before you turned 18. Probably even before 16 or 14, although it gets murkier the younger you go. Some kids are a lot more capable of that sort of thinking than others.

I doubt anyone thinks they were young children when they were able to make their own medical decisions. Since the concept requires speech, infants are ruled out.

This means in the case of infants and anyone else who hasn’t reached that nebulous age of “old enough,” someone else — a parent or legal guardian — is making their medical decisions.

This is how it should be, right?

Or is it?

Consider that by the time someone is in his or her teens, doctors will start asking for assent, if not consent, from the teenager. That is, they’re asking to sound out the patient’s feelings on treatment, aside from the feelings of the parent.

While legally the patient cannot give consent (unless, as in some states, it’s for issues related to sexual health), the patient can assent to treatment. Or they can disagree, in which case the doctor has to decide how to navigate the suddenly rough waters.

While you’d think doctors would want to avoid situations that could place them between patient and parent, the reason they do ask for assent is because — as I’m sure we’ve all experienced firsthand — children do not always follow parents in belief.

For most of us, we deviate from our parents’ beliefs in simple ways. PC vs. Mac, Democrat or Republican, science fiction or not.

But sometimes the apple falls pretty far from the tree, and children end up disagreeing with their parents about more serious, weighty things, like religion.

Religion has typically been the reason you would find a parent in court, arguing that he/she had the right to determine a child’s medical treatment. Parents who believe only in prayer, or who refuse blood or other life-saving treatments for any number of reasons, typically justify their decisions through religion.

That changed in Seattle last week when a 9-month-old baby was smuggled from Children’s Hospital by his mother, who wanted to pursue naturopathic treatments instead of allowing the surgical implantation of a shunt that would allow him to receive dialysis for his failing kidneys.

One Amber Alert and two days later, the mother was in jail and the child back at Children’s. Friday morning, a judge granted Child Protective Services custody, and permission for the surgery the mother so strongly opposed.

Not surprisingly, this case has privacy advocates up in arms, insisting that the government has overstepped its authority, and that parental rights are what matter.

In this case, the legal logic is similar to that used in religious cases, and it’s one I have a hard time finding any ethical fault with.

A child should be allowed to live to the point of making their own choice on whether or not to receive medical treatment, and until that age, you default to the assumption of doing whatever it takes to live.

[The Daily] – Biological Incubators

Biological Incubators
2006-06-21

Susan Anne Catherine Torres and Cristina Doe were born 10 months apart, in August 2005 and June 2006, respectively.

Sadly, Susan Torres passed away six weeks after birth. Yet these two girls are connected to one another through a very unusual circumstance: Both babies were born to braindead women.

According to Dr. Winston Campbell of the University of Connecticut Health Center, there are approximately a dozen cases of braindead women completing gestation to the point of delivering a viable fetus in the medical literature.

Further research in the journal of Obstetrical and Gynecological Survey shows another 15 cases of pregnant women in persistent vegetative states remaining on life support to deliver.

While there are few cases in the literature, this is largely because technology has only recently advanced to the point of making this a possible practice.

The idea of leaving a woman on life support to gestate a fetus is a highly contentious issue. There are those who believe all pregnant women should be kept on life support until delivery is possible. There are those who believe it’s up to individual families to make the decision. Then there are those who see a slippery slope of forced pregnancy and believe if a woman is dead she should be allowed to die, regardless of pregnancy.

These positions are all very self-explanatory, and a few years back, this columnist would have been firmly in the camp of “she’s dead — let her die.”

The idea of a woman being kept alive as a fleshy incubator horrified me — it was like a dystopic nightmare come to life. Women die, but their bodies are kept alive to gestate. What’s next — taking that dead woman, hooking her up to life support and then impregnating her?

In the meantime, I’ve realized that this is a non causa pro causa fallacy, the slippery slope at its worst. It’s saying that if A happens, by a gradual and continual process, B, C, D and eventually Z will happen. Z of course is a horribly bad thing, and since it should not happen, A shouldn’t either.

In reality, there is a strong line drawn between the A of keeping a pregnant woman alive a handful of months to deliver a desired fetus, and the dystopic possibilities inherent in Z.

That strong line is biology. It seems the body can maintain a pregnancy while it is braindead for somewhere around 3-4 months. While it’s long enough to attempt to bring a fetus to viability, it’s not long enough to create a pregnancy from scratch.

These days, I fall in the middle ground: I believe it’s a decision that should be made between family, doctors, friends and religious figures — the important people in the individual woman’s life.

That it be a personal decision, not a political or legislated one, is key. There is currently legislation in 27 states that allow doctors, lawyers and hospitals to override the wishes of the pregnant woman or her family. These pregnancy clauses mandate that every attempt should be made to save the life of a fetus, including keeping the woman alive on life support beyond the wishes of her family and friends.

This is where our concerns should be. It shouldn’t be with people who opt to keep their loved ones alive in order to have a piece of them continue to live in the form of a child.

Nor should it be with the people who believe that heroic measures should not be attempted, and mother and fetus should be allowed to die as nature dictated.

Our concern should be with the people who are taking these decisions out of the hands of those immediately affected and placing them in the clinical hands of the disinterested and uninvolved.

This decision, whether or not to attempt a medical miracle to bring a life into the world, is a private one, not a matter of public policy.