Life as an Extreme Sport

The Affective Part

Have you ever noticed that the colour of a Starbucks frappuchino, or really, any blended coffee beverage (and perhaps even any coffee beverage) is the colour of brown packing paper, or corrugated cardboard? I hadn’t, until today, despite my several-latte-a-day habit. In fact, the only reason I did was because, as I was draped over the customer service desk this evening in Barnes and Noble, I did a doubletake when my eyes landed on a Starbucks iced drink cup. At first, I thought someone had left their drink, then my eyes snapped the stuffed tissue and confetti topping into focus. But it took a few more minutes before I could make heads or tails of what was inside the remainder of the glass — it was such a convincing illusion, I actually wondered for a moment just how it was the tissue wasn’t soaking up the liquid.

These are the thoughts that flit through your mind as someone sees if another store has the day planner you need, after a late Sunday class and dinner with your new classmates.

I’m tired. In less than a week’s time, I packed a UHaul full of my belongings, drove 3500 miles with my parents, two cats, that UHaul and my car (which means I quite literally drove about 2500 miles), and then found, rented and unpacked that UHaul on this side of the country. Only one day stands as buffer between that and the start of what I’ve been jokingly calling my bioethics bootcamp. I’m tired.

I know that this tiredness is what is underscoring my intense feelings of imposter syndrome. I knew I would feel like this at some point at the beginning of this whole Union/Albany program, and that I would have to overcome all those things I felt when I started at Seattle Central, and when I started at the University of Washington, even when I started more specifically within the Comparative History of Ideas. Still. I had hoped it would come a bit later — perhaps around my first paper, or major test. Not now, not the first day.

The group is split in two, really. There are the undergraduates, those who, at dinner, were talking about 22 being old. Then there are the rest of us. The rest of us are the folks in the Master’s program, although I seem to be the only one who’s doing the dual degree program with SUNY Albany — another weird feeling. (I was hoping I wouldn’t be The Only One, like I was in CHID. In a lot of ways, I won’t be — oh, the glory in being able to even do something so simple as mention what my thesis was on and have people nod knowingly — but, in other ways, apparently I am.) The rest of us, by and large, are professionals. Medical doctors, nurses, lawyers.

It wasn’t so bad when we were broken into our small workgroups, the groups we’ll be in for the next 2 weeks of activity. Peter is a cardio surgeon from Florida, moving into hospital administration after an accident has left him unable to stand for long surgeries. Neal and Amanda are undergraduates in an 8 year MD program Union offers; rising seniors, a term I like. Then, there was me, something of the buffer between the ages, as it were.

But as we went around the room, listening to introductions, that imposter feeling began to sink. Sure, it sounds like I’m one of few students in the room who actually has a medical history and ethics background — hooray, minor that consumed my major — but still. These other people? Surgeons, doctors, nurses, multiple degrees, PhDs, just adding another, want it for work, school, fun… Even the other recent graduate, amusingly also from my neck of the woods (Seattle U) is living in Manhattan. Doing something different. More. Better? I don’t know.

Our group has been assigned a policy case to review and present to the class. Through luck of the draw, it’s the Texas law Baylor invoked earlier this year with Tierhaus Habermas (I’ll need to check the spelling of that name), something I did some research on for and with Sara Goering and the history’o’medicine class. I suspect it will be good to have something I’m supposed to be doing where I already know a little. Just to keep me from feeling like a complete fraud.

Aside from that, though, I can’t really begin to express how shiny this is. At one point, we were instructed to call everyone by their first name. “Everyone is exceptional, so we’re all just who we are.” This is, as pathetic and ass-kissing as it might sound, an amazing thing to me. These are names, big names, in the field. People whose articles I read in class, whose journals and books were assigned reading, people who I decided I wanted to be more like, to do the same things, to have the same sort of impact. And now I’m in a room, at dinner, talking to their wives, making jokes, laughing at socks, smiling, trying not to be so shy, trying not to be too forward, trying to just be, and probably failing miserably on all accounts.

But I was going to move away from the self-doubt and knocking of myself, wasn’t I?

I’m really looking forward to the next couple of weeks. I’ll be listening to lectures by some of the most well known people in the field, broad as it is, and some of those people aren’t researchers or professors, or even practicing ethicists, but the cases themselves. Dax. Can you believe it? I’m going to have a chance to listen to Dax speak.

Dax is the first serious case study I remember, one Nancy (Jecker) used in my first MHE class. I remember watching the videos, reading the interviews, seeing interviews, and feeling convinced that this field is the right for me. Feeling certain, for the first time in I couldn’t remember how long, that I was finally doing the right thing with my life.

Now I get to meet him.

How frakkin’ cool is that?

Of course, the flip side, not necessarily of meeting Dax, but of patients as a whole, is part of the reason we were asked to write this journal to begin with. This is supposed to be a reflection of what we think and feel, and in some ways is supposed to let us see how to distance ourselves, to record what Wayne referred to as our acclimation process. The thing is, the acclimation process worries me. Is it really a desensitization process? Isn’t this what so many people complain is the problem with our medical system to begin with?

On the one hand, I understand the point. When confronted with some of the horrors that can happen to a human, or what medicine can sustain, how can you not have the choice to either toughen or break down and cry? To act, or be paralyzed in inaction? The distance is a necessary component to maintaining professional distance and ability to use the ethical paradigm we’re being taught to do the job we’re expected to do.

But on the other hand, perhaps we need to break down and cry, and be that intimately connected to how we feel. Isn’t that feeling the affect we need, that I argue for in that damned thesis? The thing that connects us together, that prevents us from melting into autonomous and alien worlds? The thing that binds us, that motivates us to use that paradigm to do right?

The gripping hand says that I’m forcing things into an utterly unnatural black and white distinction, and I genuinely hope that this is true, and that the binarism is a result of a rough first day. That in two weeks time, I’ll write my final entry for this bootcamp, and I’ll look back on this first and smile, amazed at the distance grown between myself in such a short span of time, and that I will see how to have functional distance without emotional frost.

Before any of that can happen, however, I have to first make it through these next two weeks, ego intact and perhaps slightly buoyed. Which can’t happen until I get some sleep, find my bag and book, and continue to settle in to my new home, both academic and otherwise.

new idols

I have been meaning to link to this for, oh, almost a year now. That reader? Of course, those of you who have been longtime readers – all five of you? – know that I taught that class, and that I’m that particular reader. I never did upload the syllabus, but I should… I did use it as part of my application package to graduate school, and the kind gent who wrote that article, and suggested I shoot them that syllabus? Name of Glenn McGee? Is standing about 10 feet from me, using Jon Stewart and Stephen Colbert to teach, making horribly funny jokes, and generally charming the pants (skirts?) off everyone.

I think I’m in love. 😉 (And hello Glenn, if you see this – I’m the one who actually knew when Schiavo died. I won’t mention the late to class, got lost getting here…twice… bit.)

ADHD Research Finally Shifts to Girls

The NIH recently began a major push to do research into medical conditions and pharmaceuticals focusing on women and minorities, finally realizing that the white male model patient doesn’t reflect an awful lot of real life patients. And what do you know – the assumption that girls with ADHD don’t have nearly as bad a time with it? Wrong. I can’t imagine anyone having actual experience with someone with ADHD believing this, but people do like to surprise me.

It’s good we finally have some research about girls, but at the same time, we should be ashamed that it took this long.

[The Daily] – Biological Incubators

Biological Incubators
2006-06-21

Susan Anne Catherine Torres and Cristina Doe were born 10 months apart, in August 2005 and June 2006, respectively.

Sadly, Susan Torres passed away six weeks after birth. Yet these two girls are connected to one another through a very unusual circumstance: Both babies were born to braindead women.

According to Dr. Winston Campbell of the University of Connecticut Health Center, there are approximately a dozen cases of braindead women completing gestation to the point of delivering a viable fetus in the medical literature.

Further research in the journal of Obstetrical and Gynecological Survey shows another 15 cases of pregnant women in persistent vegetative states remaining on life support to deliver.

While there are few cases in the literature, this is largely because technology has only recently advanced to the point of making this a possible practice.

The idea of leaving a woman on life support to gestate a fetus is a highly contentious issue. There are those who believe all pregnant women should be kept on life support until delivery is possible. There are those who believe it’s up to individual families to make the decision. Then there are those who see a slippery slope of forced pregnancy and believe if a woman is dead she should be allowed to die, regardless of pregnancy.

These positions are all very self-explanatory, and a few years back, this columnist would have been firmly in the camp of “she’s dead — let her die.”

The idea of a woman being kept alive as a fleshy incubator horrified me — it was like a dystopic nightmare come to life. Women die, but their bodies are kept alive to gestate. What’s next — taking that dead woman, hooking her up to life support and then impregnating her?

In the meantime, I’ve realized that this is a non causa pro causa fallacy, the slippery slope at its worst. It’s saying that if A happens, by a gradual and continual process, B, C, D and eventually Z will happen. Z of course is a horribly bad thing, and since it should not happen, A shouldn’t either.

In reality, there is a strong line drawn between the A of keeping a pregnant woman alive a handful of months to deliver a desired fetus, and the dystopic possibilities inherent in Z.

That strong line is biology. It seems the body can maintain a pregnancy while it is braindead for somewhere around 3-4 months. While it’s long enough to attempt to bring a fetus to viability, it’s not long enough to create a pregnancy from scratch.

These days, I fall in the middle ground: I believe it’s a decision that should be made between family, doctors, friends and religious figures — the important people in the individual woman’s life.

That it be a personal decision, not a political or legislated one, is key. There is currently legislation in 27 states that allow doctors, lawyers and hospitals to override the wishes of the pregnant woman or her family. These pregnancy clauses mandate that every attempt should be made to save the life of a fetus, including keeping the woman alive on life support beyond the wishes of her family and friends.

This is where our concerns should be. It shouldn’t be with people who opt to keep their loved ones alive in order to have a piece of them continue to live in the form of a child.

Nor should it be with the people who believe that heroic measures should not be attempted, and mother and fetus should be allowed to die as nature dictated.

Our concern should be with the people who are taking these decisions out of the hands of those immediately affected and placing them in the clinical hands of the disinterested and uninvolved.

This decision, whether or not to attempt a medical miracle to bring a life into the world, is a private one, not a matter of public policy.

[The Daily] – Medicine or Miracle?

Medicine or Miracle?
2006-05-30

A recent episode of the television show House titled “House vs. God” dealt with the idea of faith healing, something that comes up a lot these days in medical journals.

What is the power of prayer? Does faith healing work? Can miracles happen?

As many are aware, there have been multiple studies that attempt to look at these subjects, the strongest being that of the effect prayer has on people.

Unfortunately, even the people running these studies will tell you they are not well designed, and potentially flawed.

This came to light recently when one of the most comprehensive studies on the power of prayer showed that prayer for post-operative cardiac patients actually appeared to have a slightly detrimental effect on the patient.

Perhaps this is a reflection of my interdisciplinary training, but I think the much more interesting questions to ask are why miracles can’t happen and prayer can’t heal.

Some would say that it’s because there is no higher power, deity or God, but do we need such a being to exist for prayers and miracles to work?

After all, couldn’t you argue that a miracle is just that which we don’t understand?

You could quite often say the same thing about our medicine. The typical example is a cell phone in the rain forest, although I’d argue there’s an awful lot of technology and medicine that might as well be (and probably is) “magic” based on how well we understand it.

There is simply the belief, the faith that it will work, because someone is being told it will work.

How is that so different than hearing a faith healer tell you the same?

Of course, we of the rational, medical type say we have medicine. We can take the time to understand how technology works. We can figure it out and we can do the math.

But we cannot and do not fully understand how the body works; we keep finding new things.Miracles keep being rationalized and understood, filed away into things to learn and knowledge to distill.

If we have learned one thing, it’s that the body is an amazing thing.

In the episode of House I refer to, the patient — a young teenage boy — hears the voice of God, and believes God wants him to be a faith healer. Dr. House takes the case on after the boy collapses in the middle of a church meeting, and eventually discovers the boy has a tumor in a certain part of his brain, the result being that he experiences hallucinations — hallucinations he believes to be the voice of God.

Who is to say that the power of the placebo effect isn’t enough to help some people?

After all, we know scientifically and medically that positive thinking does positively affect our health, including helping us recover from illness.

Does it even have to be a placebo? We understand so little of how the brain works, is it so genuinely inconceivable that there are still processes left we don’t understand?

We don’t want to entertain the notion that something can be both real and invisible, quantifiable yet mystical, so it gets filed away as faith-healing fakery and fraud.

But in 10 years, perhaps it will have a Latin name and a textbook, diagnosis and belief, some way to reconcile disbelief and faith (or evidence).

That’s the way knowledge goes: a part of life for both miracle and medicine.

Why should we limit our view of the world to that science we already understand, instead of enjoying the magic and mystery behind those things we don’t?