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Bioethics – Page 47 – Life as an Extreme Sport
Life as an Extreme Sport

Code Grey [August 08]

I feel like I knew that Bob’s prof’s were the folks comprising the Harvard Ad Hoc Committee on Death, but I blinked a few times when I heard it, anyhow. Sometimes it’s hard to remember that history is only as distant as our own memories; what is intangible history for me is Bob’s graduate days. It’s an odd sensation — and another reason why I think that Glenn is wrong when he says we have no lineage, rooted history. Perhaps he doesn’t, because he’s one of the people who’ll be the father-philosopher’s of the field, as is Bob, Art, and so forth. But for me, the, what – third generation? Fourth, perhaps? I have lineage, and it is found within these larger than life names that are suddenly grounded for me here, in Albany.

That said, and though I have several things I’d like to write about today, the first thing I want to bounce about, to glee about, is something that probably seems to silly, so prosaic. But I got my AMC ID today, and with it came an emergency code card (though I’ll note, as I told my friends, and as a Grey’s Anatomy joke, there’s no code black…). For some reason, for all my time in hospitals, and in all the roles I’ve had, I’ve always been jealous of that code card. It seemed like a mysterious world of knowing what was being said on the loudspeaker, some secret world to be initiated into. So, after getting my parking pass and walking back to Security to grab my bag, to be handed an ID that included a code card felt like I actually had crossed some line, from the side of sometimes volunteer or patient or student in a hospital so large that they never ventured out of the research wing and never needed an ID, to something more tangible, more real — an attitude I admit it is, when you think about it, silly. Yet, there it is, the reaction I had to a simple piece of paper. I suspect Sue would talk about tangible artifacts of cultural meanings…

In today’s lecture, Bob talked more on the Hippocratic Oath, moving to the question of full moral standing, and who has it. Rather naturally, I thought of Mary Ann Warren, and Sara (Goering)’s class on moral issues of life and death (framed around Peter Singer’s arguments, but an interesting way to be introduced to various positions). Anyhow, in talking about moral standing, Bob made the statement that defining death has a little to do with biology and a lot to do with morality. He then went on to explicate the moral positions of cardiac, whole brain, and higher brain death. But in introducing this rather, in my eyes, provocative turn on the subject — that death is a construct, and it’s a construct that exists so that we can both define life, and define moral agency, standing, ability and responsibility — Bob yanked our attention over to a very common phrase: oh, he was clinically dead, but we brought him back to life. Well, no, says Bob, he obviously wasn’t clinically dead, since the definition of such is an irreversible loss of function; if you were able to resuscitate someone, then they did not irreversibly lose function, and ergo are not dead . Thus, we should limit death to functional loss, where you cannot be brought back — there are too many issues with the vagueness around the language of death. I will admit, this is a charge I’ve heard a lot; at one point, knowing when someone was dead was easy, and now it is one of the hardest things to know.

Apparently Jersey is a really interesting place for ethics — Quinlan, of course, but on top of that the law recognizes that some religions look at death differently, and Jersey has no requirement that every person use the same definition as medical norm. There are some specific exceptions in line for people with religious beliefs, which seems rather enlightened. Perhaps we can hope other states will export such a view…

The idea of ventilating corpses, something that happens daily in hospitals all over the country, is creepy. There’s really no other word for it; it brings to mind the idea of a Robin Cook novel, and the ventilated corpses are really being used for some malicious reason; they’re being harvested for organs (Coma, by Robin Cook) or maybe used as batteries to run large cities (rather Matrix-y), or even as incubators for… well, babies of our own, or maybe alien babies or bacteria (reminiscent of Battlestar Galactica and the farms on Caprica). Legally and technically, there is a big difference between pronouncing death and ventilating a cadaver, and ventilating a person who is brain dead, including the very basic one of insurance, not to mention the language itself — labeling carries power. But I think that my brain will forever have the image of some pseudo-futuristic, science fiction/horror world with ventilated cadavers looming ominously in the background.

Sue showed us the end of her illustrative B-movie today. I’m very disappointed I didn’t catch the full cultural script; I was too enmeshed in my own timeline, and didn’t consider the quite most obvious option! After all, the idea was not the redemption of the family and potential for good, rather than inherent bad running in families, but redeeming the girl; obviously adoption is the clear way to redeem her while still condemning her “family”. Some of the quotes from the movie are great:

We can make an occasional mistake — the benefit is so great! (Really? Where do we sign people up for being made mistake on?)

This is for the good of the public at large! (Presuming your public is white, middle class America, mainly men…)

This segment was interesting, but mostly repeat for me. I had a full class where I focused on Cold Springs Harbor and their eugenics database, crawling through and reading and marveling at the attitude of people so recently ago and so different from my own world. And of course, people from that era are still alive and kickin’, even if they weren’t born ‘til decades later. So seeing the view is probably worthwhile. But anyhow! Eugenics fear, more than anything else, I think is what has pushed for the ELSI budget allocated by the Human Genome Project to begin with. Which comes back to the culture idea, and culture pushing/pulling our public policy.

I meant to look up the CNN report on the German doctor claiming he could vaccinate against stupidity, but we weren’t in an internet capable room at the time, and the whole exhaustion/falling over when I get home thing/no energy to find internet outside of school thing prevented me. Still, the idea of a vaccination against stupidity… do you suppose, should that actually be true (which I so strongly doubt, I won’t even bother to underline it, I’ll simply trust you’re with me on this one), that we would simply redefine what stupidity is? It’s a rather Harrison Bergeron-esque argument, only instead of keeping everyone at average, it demands that in order for there to be average, there must be exceptional and less than. Won’t we always create a less than exceptional?

It seems to me there must be some level of irony that the intent of the Eugenics Record Office was, in part, an attempt to work as a marriage record office, allowing people to make the most fortuitous marriages. After all, don’t we have databases today that are the same basic premise — allow people to verify that their progeny will be healthy?

Then again, I’m the person who saw the photo of immigrants at Ellis Island, under an American flag, and instantly thought of Nazi Germany rally pictures. I might not be the best mindframe to see neutrality and irony.

Homesick for the first time

I’m homesick, today, for the first time. Which given that I left Seattle in June, and have been on my own a week, isn’t so bad, I guess. What’s probably silly is what I’m homesick for, or rather, whom. I’m homesick for Phillip. I haven’t talked to him since graduation; he was gone, and I’m sure he’s taking a breather this summer from, well, life and me and everything else. But that’s going on three months, and I miss him.

I miss knowing mannerisms, and speech patterns, and gestures and when he was raising his voice for effect, and when he meant it.

I miss knowing where I belonged and stood and what my role was. Knowing my place.

I miss knowing the rules.

I’ll get that here, I know that. But until I get that, I have to deal with different egos and people and small sniping amongst them, and attitudes that are very different than what I am familiar with. I have to deal with a level of politics unprecedented, for me – I guess maybe I miss just having Phillip’s ego, and occasionally John, and no one else.

Or maybe most specifically, I just miss feeling somewhere safe. I have to decide who to trust, what to trust, who to listen to – so many things that I’ve forgotten about. Do I go with my instinct? Do I listen to people? What circumstances do I take to heart, and what do I ignore? Which way is up, and where is down?

Right now, I want to be curled in the corner of the CHID couch, quietly reading the latest issue of whatever, listening to the voices of the department and office swell and swirl around me, Phillip’s laughter a constant anchor in the background.

[The Daily 08-09-2006] The Road Continues

Kelly Hills
2006-08-09

It’s a hot afternoon in Washington, D.C. and a young boy buys a pickle from an ice cream and hot dog vendor, expecting cool relief from the sweet vegetable.

Instead, a flood of PCP and ecstasy floods his system, causing him to go into convulsions. By the time EMTs arrive, the boy has stopped respiration. While they are able to restore his breathing, and the hospital stabilizes him further, he does not wake up.

Two of the three neurologists to examine him are certain he is completely and totally brain dead. The third sees some electrical activity, and cannot say whether there is total brain death, but agrees that the child will never wake up.

Doctors wish to take the boy off life support; In their eyes, he is dead. He cannot survive without a ventilator and his heart needs assistance to beat. But the boy’s parents frantically demand doctors do everything possible to keep their son alive; they are Black Muslims, and believe that until Allah calls their son home, they must keep the child alive.

What’s a doctor to do?

If you have a clear idea, let me know. Robert Veatch, the ethicist, philosopher and professor asking my class this question, doesn’t have a comfortable answer, and neither do any of us.

The class, however, is not at the University of Washington. I have left the school, and even left the West coast — I’m now in Albany, New York, doing a slow boil in the high heat and humidity. They assure me the weather is not normal; I suspect they’re just trying to pull one on a Seattle girl.

I’ve spent the past six months using this space to rant and rave and think aloud, to provoke you (hello, pharmacy students!) into your own thoughts about ethics and medicine. I hope you’ve read what I’ve said and agreed, wanted to know more — or disagreed violently, and wanted to learn more.

I hope that at least a few readers decide to go down to the Health Sciences Center and take some of the medical history and ethics courses offered, maybe for a minor, maybe to join me along this road towards becoming a specialist in bioethics.

I’ve taken stands here that I don’t necessarily agree with, and I’ve worn my position on my sleeve. If you know me, you probably know which is which. For this last column, I’ll be obvious about having my heart and gratitude in the wide open.

I hear it’s tradition that your last column is a bit of reflection and goodbye. My time at The Daily has been one where I’ve had the chance, thanks to my dear friend Maureen Trantham, to explore some ideas about medicine, ethics and popular culture outside the formal academic setting. It’s been a wonderful opportunity and experience.

But as it may be evident, I’ve a lot to learn before I can comfortably call myself an expert. That’s why I’m on the other coast, three hours ahead, being steamed to death. I’ve joined a program run by the Alden March Bioethics Institute; I’ll be earning a master of science in bioethics from the Graduate College of Union University and Albany Medical Center, as well as a PhD in Philosophy from the State University of New York.

Hopefully, I’ll be following in the footsteps of those who’ve inspired me, the people you should seek out if you want to be so inspired: Phillip Thurtle, Denise Dudzinski, Sara Goering, Brian Reed, John Toews, Jess Olsen and all the great folks in CHID and MHE. Thanks … I’ll miss you all.

I don’t have the answer for the scenario I posed at the beginning of this article, but maybe I’ll come back in a few years and let you know what I’ve found out.

[The Daily 07-19-2006] Death Made Pretty

Kelly Hills
2006-07-19

Death by lethal injection was dealt a blow last month when a U.S. district judge ruled the process may cause extreme pain and suffering before death.

In the United States, death comes in a three-drug cocktail. First, a drug is administered to cause unconsciousness. Another causes paralysis and a third stops the heart.

The objection is that it’s possible for someone not to be fully unconscious after being given the first drug, and feel both the paralysis and the burn of potassium that will stop the heart, causing significant fear and pain.

The court ruled fatal drugs couldn’t be administered without certified medical personnel there to ensure the prisoner is first unconscious before administering further drugs.

Since no medical personnel can be found who are willing to violate the American Medical Association ruling that it would be unethical to participate in involuntary death, there have been no deaths by lethal injection since the ruling.

There is a second method that could be used to bring about death, and it’s one that requires no medical personnel to participate — administer a much larger dose of the drug that causes unconsciousness. The higher dose assures unconsciousness — so no awareness or pain — but it can also cause death by ceasing respiration.

So which matters more: The comfort of the to-be executed, or the comfort of the witnesses to the death? The first method takes only 10 minutes, and because of the paralysis, the prisoner appears calm and relaxed.

The second method becomes visually difficult for witnesses: the unconscious prisoner could jerk and spasm for upwards of 45 minutes before death.

I believe that too many people on death row are there falsely, due to the failings of science or the legal system. But I also believe there are people there who’ve admitted to their crimes, or for whom the evidence is more than overwhelming.

In general, these people are so heinous, reform appears impossible and it’s in society’s best interest if they were humanely euthanized.

The innocence issue aside, it takes entirely too long to move from sentencing to execution. We change so much in 20 years that we’re quite literally not the same person — our cells have died and been reborn and died again almost three times over. Multiple biological changes have occurred, and that’s not even beginning to consider the mental and emotional ones.

Secondly, there’s the objection of pain and suffering. Yes, the person is being executed — but I don’t think that means we should cause pain in the process. The supposedly “humane” death by injection is fraught with problems and pain, but a serene death for the prisoner is disturbing to witness.

Of course, we opt to comfort the witness and not the person being executed. It makes me wonder a bit at our attitude toward death: It’s OK, so long as it’s pretty and serene … ?

Is this just a manifestation of our general desire to have death be neat and tidy, a further extension of our attempt to sanitize dying? In our desire for neat appearances to comfort the vision we have of our own deaths, do we take the fast and cruel approach because it’s prettier?

I think most likely, yes.

Love at First Lecture?

I was late this morning; I got lost. Twice. Once in getting to Union itself — I took the wrong exit on 90 — and then on the Union campus, trying to find Olin. As a result, I walked into Glenn’s lecture almost 20 minutes late (although thankfully the clock was off, so only thought I was 10 minutes over the start). This, I thought, was an awful omen. Here I was, traipsing in late to the first lecture by the editor of AJOB, the guy who runs AMBI, the person coordinating the program that, I’m getting the idea, I’m one of the few people in. So, in other words, someone who’ll know me, probably pretty well, by the time this is all over.

And by this all being over, I mean the ProSeminar.

Not an auspicious start. I wonder if Mercury is in retrograde. Not something I believe in, but at times a convenient excuse. Something’s throwing off my innate mapping skills, anyhow.
So I get to my seat, I sit down and unpack, Glenn thankfully not singling me and my clicky heels out. And then I look up and see that Jon Stewart, in Daily Show getup, is staring at me from a large projection screen. Oh crap. Not only am I late to the first day of lecture, but I missed him using not just pop culture, but icon Jon Stewart, in his lecture. Me, the girl who’s used pop culture to teach multiple classes, missing this. Can I just commit seppuku and get it over with?
Thankfully, my beating myself up ended pretty quickly, largely because Glenn is So. Damned. Engaging. He’s Phillip (my former adviser and mentor) in energy, but he has the satire and sense of humour of a Daily Show correspondent, and talks about my passions. I quickly sank into the GlennZone, and forgot about my self-deprecation.

Then, it got even better, as Glenn introduced Jon Stewart, and I got to see my two favourite satirists take a poke at The White House, Bill Frist, the Schiavo fiasco, and ethicists in general. I was laughing, hard, and merriment wiped away the last of my stress.

I took copious notes while Glenn spoke, a lot of what I was thinking, but also what he was saying. Especially the particularly quotable bits, although he might prefer they not make their way into my sig file!

The idea of codes and oaths, and the idea of good being unbreakably linked to excellence is an interesting idea; that you cannot parse them individually. A good surgeon is a surgeon who does not remove the wrong organs. To then take this goodness and link to ethics, though, I wonder? Can you be ethical if you’re bad at it? Well, can’t you be ethical, but incompetent? To have the good intent, but the bad skill? Is a medical student unethical because they are unpracticed? I’m not sold on the idea.

I do think it would be unethical to continue practicing if you routinely made mistakes, never improved, and so forth, but there has to be room for ethical behaviour and improvement, learning!

I’m also not sold on the idea that bioethics is ahistoric, not rooted in any solid ground. While ethical codes are subject to what seems like pretty constant revision right now, is this really bad? Isn’t this the sign of a new and healthy field, one that’s living rather than stagnating? And is it truly unrooted and ahistoric, without lineage? Wouldn’t it be more accurate to portray the field as a rhizomatic tree, with multiple branches? Or maybe more accurately, a hybrid tree, one where several different grafts form the whole? Apples and oranges… Glenn did say we’re all hybrid weirdos, a label that applies so appropriately to me and my CHID background.

I don’t come from a straight philosophy background, although I’m strongly rooted in phenomenology, so I suppose the idea of a lack of lineage strikes me as strange. My lineage comes through Phillip, and the history and philosophy of science. It comes through Sara and Denise and Al Jonsen and Nancy Jecker, major thinkers in the field, and my ‘doctor father’. (Although really, only Phillip took that particular role — everyone else would be more big sister/brother/aunt/uncle. I suppose Al could be doctor grandfather…) My background also contains a strong teaching component, something I hope to not lose. I taught for two years, and I loved it — it’s one of the things that propelled me to a PhD program, and not just a Masters. It may well be that Philosophy doesn’t prepare people to teach, but I’d like to ignore that and teach anyhow…

We had to talk about Schiavo, something I’m still making peace with. Phillip had wanted me to use Schiavo in my thesis, to which I eventually bowed and did, but it felt like, pardon the expression, kicking a dead horse. But, as Sue noted later in the day, it’s a case where you can simply say “Schiavo” and everyone knows what you’re talking about. It’s not a secular script, per se, but it is a secular story that has engrained itself in a particular cultural time, and contrary to what Glenn said, it is funny to suggest that if you don’t know the particulars of Schiavo, you must be sleeping.

In talking about Schiavo, I was pretty gratified to know about the case and be comfortable talking about it — I’m sure I’m not the only one who knew what her gravestone date of death said, although I didn’t want to mention the third, “laid to rest” line just in case that was showing off… It did, however, make me feel more like I belong here. That I have some knowledge, and am not an imposter hiding in the clothing of someone clued in.

Glenn also mentioned something I’d not thought of, and I find very interesting. Is it torture to keep her alive, if she is not there? If the TerriEssence is gone, never to return, is it truly torture? What are you torturing? A biological hulk that is acting on instinct? Can she truly suffer, if there’s no she? As I mentioned on Blackboard, Eric Cassell says there is a difference between suffering and pain, and that difference is drawn at whether or not you can anticipate future pain — something that requires a sense of self, a consciousness. An essence, a soul. If there is not that essence, then there is no time telling ability, there is no ability to suffer.
That is not to say, however, that there is also no pain. Pain is a simple response of the nociceptive system, it doesn’t require serious levels of thought or consciousness. A sea anemone feels pain; although this is feeling in a touch/pressure sense, an affective sense that does not require thought, intelligence.

Another thought on Glenn: his language gives him away as a philosopher.

So, the other interesting thing we talked about was fertility, and what it means to be infertile. Glenn argues that fertility is different than, say, cardiology, because the patient comes in and defines and identifies and explicates problems and desired treatments, and this does not happen with other diseases and illnesses.

But isn’t this now incorrect? Aren’t people arguing that the continuation of the medicalization of society and the ‘net is giving rise to the expert patient? Don’t we hear doc’s bitching about this all the time? “I have this symptom, I must have this problem, and the commercial tells me the purple pill will fix it! Give me the purple pill!”

Glenn was asking the wrong question this morning when he was asking about infertility. It was too selective and pieced out a question — not holistic. The question is not is someone infertile and how do they become not, but whether or not a person can reproduce without the assistance of anyone but their sexual partner (as we are not asexual creatures). If the answer is yes, the person can reproduce without assistance, then there is no further questioning. But if it is no, we get into flowchart like situations:
Can the person reproduce? No?

Does the person want to reproduce?

No — okay then, nothing to see here.

Yes — okay, then why can’t the person reproduce?

This question can have numerous answers, and what answer is given dictates what happens next. Is the fallopian tube blocked? Are there eggs? Does the man have a high enough sperm count? What is the sperm’s motility and mobility? What about seminal fluid — is there enough? Can fertilization occur? Can implantation occur? Does she continually miscarry? Is there a prolapsed uterus? The questions can continue, and from each question then comes either a solution or another question.

Infertility is simply a medicalized shorthand that tells people there is some reproductive issue occurring, something that is wrong, where a person’s reproductive ability contradicts their reproductive desire.

By saying desire, we can frame it in terms of want, desire — where you would not necessarily claim the same thing occurring for a heart transplant patient. But we can also see it in the terms of the heart transplant patient, who needs a new heart in order to continue their biological destiny of being alive. Another biological destiny is reproduction — so there is a need, then, to overcome the medical issues that block that genetic imperative.

Also, and I’m sad we didn’t have a chance to chase this, but Glenn took a comment from a LIM student, who said that curing infertility would be returning function to normal, but can’t you problematize the idea of normal? What does it mean to be normal? Normal to yourself? Your own baseline? Well, what if your baseline is infertile — wouldn’t that be normal, for you? Normal to society? Well, what society? Our society? Doesn’t our society take infertility is normal after a certain age? It’s too vague a definition, and too flexible and open to poking of holes.

And in closing, to blend a bit of Sue and Glenn: Zizek would argue that popular culture is exceedingly important in shaping mass cultural expectations about behaviours in our society. While we are a nation who doubts intellectuals, and demonizes them — I would argue more and more, since the reign of the first Bush presidency, but I’m an unrepresented moderate — there is a refuge in science fiction, both in movies and the growing number of shows on television, especially the SciFi channel. And I still maintain that Daniel Jackson of Stargate fame is an example of the rescuer scientist, not the demon. Shall we argue?