Life as an Extreme Sport

6:45 AM

There is a difference in the room,
A silence.
A body.
The body of my mother.

Her hands are still warm.
Rigor mortis has not yet stiffened them,
     they bend into my hands.
Her cheeks still slightly flushed
But there is no mistaking – she is gone.

Finally, I can do what I have wanted to do for a week.
I climb into bed with my mother,
     laying my head against her shoulder,
     gripping her hand tightly in my own.
It would be so easy to think she was still alive,
     still there,
     about to shift to put her arms around me.

But her chest no longer rises in time with my own,
And her heart no longer flutters like a tiny bird
     in a cage made of bone.

I surprise myself by not crying.
I just lay there quietly,
with Mom
It’s only when I try to speak that the tears come.
I lean up to press my cheek against hers
and whisper

Goodbye, Mommy.
Goodbye.

Cue Scene, Stepping Sideways

I’ve stepped sideways, an aware out of body experience. I’m still aware, still feeling the tears trickle down my face silently, but I see the scene as though it were a movie. I think the disconnect came from the music – we’ve been playing James Gallway since the hospice nurse left.

I got up off the couch a few minutes go, my attempt at a nap dissolving into hopeless failure. I grab my soda, book, and blanket. Cue scene:

The woman is tall, pale, dark circles under her eyes. She’s wearing bright and happy flannel Eeyore pajamas that seem to have done a swap with her – Eeyore is smiling, she’s the one with the gloomy frown.

She walks into the kitchen a bit stiff, pops a couple of pills from the bottles, and grabs a donut hole. She bounds quickly down the short flight of stairs, ready to tell her waiting family that they should have bought more donut holes when a lifted finger and alarmed look from her sister stops her cold.

She freezes in place, taking in the room. Her fater is to her left, sister across the room from him, and between them is a hospital bed. A hospital bed occupied by their dying mother. Curled to one side of her mother is the cat, a soft round ball of possessive watchfulness.

The tall woman walks quickly across the room, to the easy chair directly across from her mother. Tears almost immediately begin their silent course down her face.

Her mother is gaunt, pale, eyes sunken. Her shock of short white grey hair is pushed permanently back and off her forehead, a fashion that would be so contemporary if it wasn’t because of all the hands smoothing he rhair back as they comfort themselves kissing her goodbye.

The younger sister, in her sweats and Bryn Mawr top, is slowly but steadily tending to their mother. She dutifully checks the pulse rate, the O2 saturation, the pain levels and dispenses the bolus as needed. She wipes their mother’s forehead with a damp cloth tracing the hollow curve of the cheek. Gently, gently, she swabs the inside of the mouth with a sponge soaked in water – the only way they can get her any water without starting a line, and they are all in agreement there – no lines.

The father just sits back and watches this, accustomed to the girls and their medical knowledge trumping his. His eyes are closed, but he’s listening – you can see it in his smiles and frowns.

Capturing a Moment

We’ve triangulated around Mom’s hospital bed, Tracy in the place of care, Dad across from them, me at the foot of the bed. I’ve just come downstairs, almost bounding, but was hushed by Tracy as I lifted the curtain to come in. Tracy was watching a portable pulse-ox machine intently. Dad’s eyes are closed, tired resignation all over his face.

I froze in my tracks and immediately my gaze goes to her chest – I hold my breath. Is she? Did she? She shudders then, a deep and wracking noise. Dad shudders slightly in time.

I walked, then, quietly to where I am at the foot of the bed. Small bit of sedatives aside, the tears start falling, tracing quietly down my cheeks. And then the weirdest thing happened – just, my self, I shifted sideways and suddenly saw the entire tableau in front of me differentl. The sisters, reconciled of their differences, the older respecting and honouring the younger’s talents, following her lead and letting te family baby be in control. The tired father, watching his daughters with pride, his wife with deepest sorrow.

With clinical precision, I noted my mother’s shrunken, gaunt body, the pendant of St. Peregrine still on, watching her heart beat, still strong, through the paper thin tissue of her chest.

The detachment continuing, I look around the room – I see the pale beige flowered wallpaper, the honey chair rail, the new light and ceiling fan above Mom’s bed, the gathered chairs, one empty of any visitors we can see but, but with a stuffed animal holding the space as a proxy. I see the pool table shoved against the wall, covered in family photos and medical equipment and a new flat screen TV, video and DVD player tucked behind. The sewing machine turned into a table for more photos, lamps, and a wall of plants Mom has nurtured over the yeras, as she nurtured us.

A thought like that, I think, should send me sobbing. Instead, a lone tear trickles down my face, and I am almost bemused.

What the hell – my logical detachment thinks – is wrong with me? I go through the possibilities, even as my brain notes the perfect warm coffee colour to the drapes that separate the room from the rest of the house, the tasteful touches, from homey blankets to small religious statuary and icons covering both Catholicisn and Buddhism.

Could I have taken too much of the sedatives? Too much pain killers? No – normal amounts, normal times, what else? I had eaten, but that’s a good thing. Maybe, I think as my gaze shifts back around the room and another tear silently escapes, I’ve gone into shock?

And then, as my eyes cross the curtains again, they catch glimpse and it hits me – the music, some instrumental music provided by James Gallway – is playing The Wind Beneath My Wings, and it is the final detail, the little necessary touch, to make me feel as though I am in the end scenes of some dramatic movie.

I almost laugh, getting strange looks from both Dad and Tracy.

The song shifts to Angel of Music and I curl up in the easy chair, pull the blanket over myself, and watch my dying mother struggle to – I don’t know if she is struggling to live or to die, but she is struggling.

I watch her, slowly, tears continuing to fall until I drift off into a light sleep, her face burned on my mind.

under a bus

There’s been a lot of language about not throwing people under buses, and being careful in action. I learned today just how one way that expectation can really be. While I’m trying not to be pissed off, I’m furious. I’m livid, to be honest – madder than I have been in a long time.

I spent a long time talking to someone who’s found the most adorable animated bear for “giving hugs” online, and we talked about how similar we are in hating large gestures and big compliments. I realized, when talking to him, that the big gestures are almost offensive because they seem to imply there’s something special about just doing my job. And I am many things, but I am not lazy, and I have a strong and fiercely determined work ethic – once I become involved in a project, especially emotionally, or if I at all begin to view it as mine, I will work my ass off to make it the best thing possible. Because that’s what you do – that’s what it means to have a work ethic.

I hate giant expressions of gratitude for doing, what at the very basis, is simply doing my job. S~ has compensated for this by saying things like “I know you hate compliments, but you’re the [fill in the blank].” It’s humorous and gets the point across.

But when we were talking today, we realized we’re the same in that for us, expressions of gratitude are the small things – as are expressions of empathy, friendship, etc. It’s the picking up of a latte when at Starbucks, because you know it’s what the person would want or because you’re just thinking about them. It’s about giving rides to the airport, or picking someone up. It’s insisting on taking someone out to dinner as a thank you for a specific project, or a birthday. It’s leaving a bottle of wine as a gift, unsaid, because you think it will be enjoyed.

These small things for me are the things that say “I appreciate you.” I know I’m needed – it’s not arrogance, it’s simply knowing I’m good at what I do, and that I pour my heart and soul into it, because if I’m going to do something, I’m going to be excellent at it. That’s just how I am. For me, what matters is those small gestures of appreciation and shared time. Of, for example, S~ spending the hour talking to me he didn’t really have, this afternoon, when he realized how upset I was, because he knew I was upset and that talking was just the thing that was important.

Maybe that’s it, too – about prioritizing importance. You can tell me something as much as you want, but if your action doesn’t match your words…

I don’t know. I’m tired, I’m angry, I can’t lift something as simple as an empty suitcase to pack, and didn’t have a chance to FedEx the boxes of packages – which means I do it in the morning and risk losing the important parking spot, or just figure out how to get it on the plane with me. I don’t know. I’m overwhelmed, because I had the rug pulled out from under me, and was unable to complete several long lists of things I had made and needed to do prior to leaving.

Maybe in three days I’ll laugh about this. I can only hope.

Sally’s Song

I have a problem. I’m being treated for it – for at least the chemical symptoms, I’m on antidepressants, which is a good thing, since it addresses the problem with my arm, as well as that other problem. The one about not handling my mother dying at all well, or with anything approaching grace or dignity or serenity or any of the things I should be.

But I can’t motivate myself to do much of anything, other than lay in bed. I realize this is exacerbated by just finishing ASBH, and being tired from that, but I have spent the last two days alternating between sleeping and crying until I decide that’s enough and sedate myself to stop crying, which often leads to falling back asleep. I’m slipping further and further behind on schoolwork, and the fact that my stomach has once again refused to keep anything down the last 12-odd hours isn’t helping. (No pain control, no sedatives, no nothing but me, raw thoughts, raw pain.)

I don’t know what to do. I don’t know how to get around this. The prescribed antidepressants don’t appear to be doing anything – I haven’t seen a difference, anyhow, or felt one. I’m not sleeping more, if anything I’m sleeping less. The pain is ratcheting up and out of control, and I know that’s because it’s connected to dopamine and serotonin levels in my brain, which are obviously bottoming out.

I’ve mentioned this to the university adviser, who’s told me that maybe it’s time to just stop, step back, and take care of myself. I haven’t mentioned it to the other adviser, because I haven’t been able to get a meeting. I’m sure I could if I made it dramatic, if I said I think I’m starting to fall apart at my seams, but that feels disingenuous, even if it might be true.

It could be weeks, it could be months – hospice hasn’t told my family to start preparing, so there’s some time. But every morning I wake up thinking I don’t belong here right now, I belong there. Every day is a day wasted, a day I could be spending the precious little time left with my mother. My career is safe, my job can be done anywhere – as evidenced by the fact I do it from home more often than not. School will wait, but Mom won’t. Mom can’t.

I don’t even know where to begin. I’m so stuck, so behind, and the person I should be telling this to, who should be helping me figure this all out, just isn’t available. Not without some grand statements and gestures on my part, and that just makes it feel so false.

For whatever illogical, fuzzy reasons, right now I think I need truth more than anything else. I don’t need false pity or socially expected responses, I need truth. The truth of spending time, or listening, of caring. I need a truth that feels so fake when it is only given when demanded.

and i should edit this to note that so far, the last batch of meds have taken hold, so i will probably regret this when sober…

subvocalization

I’ve stopped asking when things will get good – I realize, after all, that there are good things going on, it’s just that I get overwhelmed at times and can’t see the forest for the trees. Or something wise like that.

It’s really more accurate to say that I’m trying to stop vocalizing the thought – I still have it, and often. Today is a great example of that. I woke up several hours later than I had wanted, groggy beyond belief. (Apparently, since not only did I reset my alarm, apparently, but eventually decided to unplug it from the wall.) I had over 100 email actually needing some moderate attention, because I basically ignored my computer last night. In that, there was email from my sister passing on a message from my mother that was heartbreakingly sad, several notes from former colleagues about the suicide of someone I knew professionally at UW, and a whopping single email from anyone I work with, my exec editor, in response to a question I mailed last night.

So I’m surrounded by death and feeling, at the moment, if I just packed up and left, it wouldn’t be noticed by anyone. (Or more realistically and accurately, if I turned off chat clients and shut down email, basically going on radio silence, it wouldn’t be noticed by most.) What a charming mood this puts me in.