Life as an Extreme Sport

gather ’round ye olde camp fire

Alright, kids. We need to sit down and have a chat, and rather right quick, apparently.

First, hi! Wow. Rather suddenly there are quite a lot of you reading this, eh? Mostly silent, but you’ve still got a way of making your impact. I especially like the links and trackbacks and such, thanks.

But see, here’s the thing. Y’all are sort of this vague and amorphous mass, and well, we don’t know each other. (At least, the last time I looked, I didn’t know any amorphous masses. There might be one in my fridge by now, I did forget to clean it out before I left.) Maybe more importantly, you don’t know me – not even those of you I talk with in other mediums. (Consider the fact that the vast majority of the people I talk to on a frequent basis, I have known less than a year.) That can make things kind of weird, because you attach more emphasis on things that are just casual toss-off’s on my part, and probably don’t know what to look for in things that are actually serious.

My dear friend Michael summed it up quite well when I was laughing to him about this earlier tonight.

That’s the problem with blogs. They’re so public and wide audienced that people assume anything posted in them is of critical import, when the purpose of them has simply been to chronicle life, something everyone knows about their own blog but never remember when reading others’.

This, of course, doesn’t mean we can’t and won’t get to know one another… it just means that maybe y’all need to take a couple deep breaths and not worry so much when I post about having emotions.

This post, this one right here, is my 721st post on this blog – I’ve been doing this for a while now, probably longer than most of you, and over the years, a lot of emotion has been captured. This is a chronicle of life. My life. My misadventures, as it was so aptly and recently named. For the last couple of years, that focus has been on academia and my journey through it. But I’ve made the conscious choice that I’m not going to hide in that ivory tower. I don’t want to be your stereotype of an academic, detached from the world and busy with abstracts. Let’s face it – academics, especially those who can put PhD after their name, don’t have the best reputation for being down to earth, or in touch with anything other than their work. Forgive me if I’m trying to avoid that.

Yes, I write about life in all its adventures, mis or otherwise. Sometimes it’s about school, sometimes about my family, cancer, life – even work. But give me some credit, people. I’ve been doing this for a long time, and everything you read is quite carefully filtered. I’m not going to say things that I wouldn’t feel comfortable saying to anyone over coffee and a danish. I’m not going to violate confidences, I’m not going to say something and regret it later – half the time, you read something hours, if not days, after I’ve written it.

I have a silver cuff bracelet. I wear it every day, for reasons I’ll explain some other time. On the front, facing me, stamped in quirky lettering, it says “breathe”. A reminder, to myself, to stop when stress overwhelms me, to pause even when life is good, and center, be. Breathe.

It’s good advice. I heartily recommend you adopt it, especially as it seems to be needed. Just breathe, people. Just breathe.

keep your injured looks to you we’ll tell the world we tried

I’m very angry. It’s a difficult phrase and feeling to admit to – it’s not something I feel very often. Sure, I get flashes of frustration, but one of the better things about Buddhism has been learning to accept the frustration, let it flow through me, and away. Feel the emotion, let it go. Or at least, feel the frustration and then let it go.

In a lot of ways, that’s really helped. A lot of the anger I used to carry with me was just un-vented frustration, pent up and kept inside, allowed to ferment. And in other ways, Buddhism has helped me to understand that most of the time, when I’m angry I’m actually afraid. So I’ve gotten better at taking back that layer of anger to see and deal with the fear.

But this time, I’m just angry. And it’s not one thing, which may be why it feels like such a setback. It’s several things, some recent and some not, and they’ve all added up like straw on Proverb the Camel’s back. I’m angry at things I can’t control, at things I don’t know how to control. I’m angry with people who called themselves my friend and then behaved in extremely unfriendly manner, and I’m especially angry with one in particular, because for all the promises of being there when the going was rough, when the going got rough, said “friend” ran. Yeah, who knew my mother being so ill would be worse than getting divorced – I mean, what a shock. ‘Cept for the whole not thing.

I’m angry with myself for still caring, for still smiling at memories and thinking of these people who made it so clear their lack of interest in supporting me, who dared get in my face because I wasn’t what they wanted or expected (and to do that after the ex-husband and all his accusations of the same).

I guess I’m just angry at a lot of situations I’ve found myself in, and for not knowing how to handle them and not having the people around that I would rely on to help me with it. I can’t be perfect all the time – even most of the time – and this still irks me, going on 31 years. You’d think maybe eventually I’d learn I can’t be perfect, but it just seems to be one lesson that won’t stick.

I feel like I’m operating, for the first time, without a safety net, and I don’t like that feeling at all. …which maybe is the fear, after all. That I’m going to fail, I won’t be perfect, and as I fail I’ll fall, and no one will catch me.

(Do me a favour and don’t assume you know what this is about. You don’t. It’s one of those lovely things where there’s no one, major thing. It’s little facets of everything flying together into a perfect storm, emphasized by the fact that I’ve flown back to Oregon once more.)

Hurricane? What hurricane?

Google demonstrates just how reliable their Google Maps service is: they’ve replaced satellite imagery of New Orleans with pre-Katrina documentation, effectively erasing (and hiding) all the damage done in New Orleans and the surrounding Gulf Coast area.

Google’s response, when questioned by a Senate subcommittee? It seems to boil down to scratching their heads and saying “woops”.

outed

I’ve been outed, the rumours are true, I write for more than just you,… whoa, apparently Joss Whedon invaded my thoughts, as I was about to bust out in some Once More, With Feeling-style lyrical shenanigans.

But yes, for those of you reading the editors blog of the American Journal of Bioethics, that would indeed be me that the lead editor just introduced. For those keeping track, that means I write here, there, at the Women’s Bioethics Blog, and the Medical Humanities blog. That’s a lot of blogging.

In actuality, though, I find it pretty easy to figure out what goes where – I just start writing, and the content directs me with where to post. The closest overlap tends to come on issues for the Women’s Bioethics Blog and the AJOBlog, and in that case, the tone (or “voice” for those of you plagued by a theory-heavy humanities background like myself) tends to tell me where to go.

…does this make me a blogaddict?

Hard Data Doesn’t Represent the Best Medicine

An article in the late February issue of Time Magazine on evidence-based medicine and why it might be a bad thing for doctors to fully rely on it reminded me of what has to be my hands-down favourite journal article, ever. Now four years old, it’s critique of evidence-based medicine is still one of the sharpest I’ve ever seen. From the BMJ website: Parachute use to prevent death and major trauma related to gravitational challenge: systematic review of randomised controlled trials.

A Dr. Gordon Smith and Ms. Jill Pell decided to “determine whether parachutes are effective in preventing major trauma related to gravitational challenge,” utilizing prominent sources to analyze the data available, sans any actual randomized trial. Their conclusion is an argument I’ve heard against evidence-based medicine many times now, but never quite so succinctly as this:

As with many interventions intended to prevent ill health, the effectiveness of parachutes has not been subjected to rigorous evaluation by using randomised controlled trials. Advocates of evidence based medicine have criticised the adoption of interventions evaluated by using only observational data. We think that everyone might benefit if the most radical protagonists of evidence based medicine organised and participated in a double blind, randomised, placebo controlled, crossover trial of the parachute.

– Kelly Hills

[ed: please welcome guest blogger Kelly Hills, student in the Alden March Bioethics Institute MS in Bioethics program and doctoral student in the AMBI joint degree program being “taught out” by Albany Med/UGC and UAlbany Department of Philosophy; Kelly blogs for the Women’s Bioethics Project blog as well as keeps her own blog about ‘academia as an extreme sport’, chronicles of the [mis]adventures of an academic in training to work in bioethics. She is also working at AMBI in the Scholar slot and recently co-authored a Nature Medicine review essay on transplantation in the black communities of America. Welcome Kelly, who joins Stuart Rennie, John Robertson and others along with your editors.]

Originally posted at the American Journal of Bioethics Editors Blog.