Life as an Extreme Sport

soaking in misanthropy

Ye gods. I’m having the sort of misanthropic day where even being incessantly cuddled by two adorably affectionate kitties isn’t helping. I’ve tried most of my normal outlets for venting, and in almost every case it’s just made things worse – I can’t believe I just had to pull an “I don’t need a lecture on ELSI” card on someone in an argument; yet, there it was and I did. Maybe I’m asking too much, but when talking about whether or not physicians should have a right to refuse treatment, I’d like a bit of credit for that which I spend my every living breathing minute soaking in.

Of course, today I’m debating the merits of that soaking to begin with. I’m at this weird point of confidence level where I don’t need minute by minute hand-holding, but I sure as hell need more than 30 minutes, if I’m lucky, a week. But it seems like, since my default mode of operation is “adult”, and thus I don’t throw down with a temper tantrum every time I want or need something, I continually get dropped to the bottom of the list in favour of those who have mastered the fine art of being over 6 and still comfortable pitching fits. With a thank you, certainly, but it sort of sucks to feel like the result of being competent is being ignored until you screw up too badly to be ignored, ya know?

Of course, some might feel they should chide me for the implicit assumption that I will screw up eventually, and be taken to task for it. I think that’s where I still need the hand-holding – my faith in myself does only go so far, and I’m pretty sure that once I get too far in the deep end of the pool I keep getting tossed into, I will drown. The fear, of course, is that I’ll drown and take down others with me.

A lot of what I need right now is probably buried under that pile of laundry on my bedroom floor, symbolically represented by the meditation cushions I know are there but I can’t see. Suffering might be inevitable, but does self-created suffering have to be?

We also often add to our pain and suffering by being overly sensitive, overreacting to minor things, and sometimes taking things too personally. We tend to take small things too seriously and blow them up out of proportion,… whether you suffer depends on how you respond to a given situation.
-His Holiness the Dalai Lama

I just wish I felt like I had an option somewhere between “learn to mimic a two year old” and “be a doormat” – and that the option were simple, easy, and didn’t come with any repercussions. …I always did have a healthy imagination.

Perhaps Sarah and Jareth’s exchange is the most accurate: “It’s not fair!”

“You say that so often – I wonder what your basis for comparison is.”

Part of me thinks that my basis for comparison is off, and the other part thinks that by even making it about me and assuming that I am the one with the issue, I am taking blame I shouldn’t. The geeky gripping hand points out that it might be easiest to just stop at “making it about me” – but maybe that’s easier, because I could at least have comfort in existing. If it wasn’t about me at all, perhaps it’s just back to doormat.

When I get stuck in this sort of loop – this sine wave pattern, Sandra dubbed it earlier – I inevitably hit a point, just past talking it vaguely out to myself (hi!), where I simply stop talking and I try to fade away. Where I try to minimize the impact I leave around me, and just slip through life unnoticed. Because I suspect, I think I have always suspected, that if I stopped talking, stopped demanding attention, stopped reminding people I existed, no one would remember, and I would just fade away.

At every job I’ve ever had, there’s always come a point where I’m the last one left in the office, and I find this out not because people have said goodnight, but because I get up for some reason, and end up doing a lonely circuit and realizing that the entire working world left, and no one thought of me even enough to say goodnight before they went home. Learn enough about indigenous cultures (or just read lots of Neil Gaiman), and you eventually come across the idea that you are only dead when you are forgotten. Maybe that is, at the root of it all, the problem, the fear – if I can be so easily ignored, forgotten, when I make the effort, what happens if I become tired and I stop?

The fear that I’ll fade pushes the fury to be heard, and the sine wave repeats down the line.

things I never imagined saying

I’m not sure what this is a statement of/on, other than how big a geek I really am, but I quite literally just hung up the phone and said “wtf? I’m a bioethicist, Jim, not a lawyer!” to my mostly empty office.

Baffling, people are.

Tasteless and Unethical? Sounds Like Reality TV to Me!

In a display of truly questionable ethics that I would only expect from American reality television, a Dutch reality TV show is set to premier – one that has three families competing to win a dying woman’s kidney. The show producers admit that there’s no guarantee that the families will go through this ordeal and receive anything, including a winning kidney – although they hope to skirt Dutch transplant laws by transplanting the kidney while the donor is still alive.

The producers echo the same altruistic motivations any producer of any show that exploits a failing in the medical system (see any number of non-quite-reality-TV airing on American stations right now), that they’re doing it to draw attention to the shortage of organs available for transplant, and that their show isn’t as bad as the reality of the number of people who die every year waiting for transplant.

No, their show is only show bad that three families will compete, beg, plead and do whatever they can to win the sympathy of the voting public and sway the dying donor, regardless of the fact that Dutch law does not allow post-mortem directed donation, that their family is the most deserving.

A few years ago, I wrote about an ABC show by the name of Miracle Workers, and what I said that that show is equally applicable to BNN’s Big Donor Show: when medicine begins competing with television to provide medical services to people in need, when network executives are masquerading as fairy godmothers, we need to ask ourselves: do we want medical care to continue becoming a theatre of entertainment, something we should be lucky to receive? Are you pretty enough, sexy enough, compelling enough to be picked out of a flood of applicants to receive the chance of care? Will your story win the hearts, minds, and most importantly, votes of the viewing public?

-Kelly Hills, with thanks to everyone who sent copies of the story to us!

[It is the ultimate in a TV reality show–organ donation by the dying! American Idol take a back seat to Dying Dutch Decider! -Art Caplan]

Originally posted on the American Journal of Bioethics Editors Blog.

Is 2 Hours and 10 Tries Humane?

The AP is reporting that it took 2 hours and 10 jabs before Ohio prison staff were able to insert shunts to deliver a lethal cocktail to inmate Christopher Newton. Botched executions have become almost common now, with multiple states questioning what the most humane method of execution is, and in at least nine states completely suspending lethal injections while the procedure is re-evaluated.

But this case takes a bizarre turn when you start reading the details. Newton laughed and joked with the prison medical staff while they tried to insert the needles, and he was even allowed a bathroom break during the proceedings. But the truly bizarre comes from just how helpful Newton was in his own case, insisting that the only way he would cooperate with investigators is if they sought the death penalty.

Bizarre aspects to the case aside, Ohio is one of the states that had a botched execution last year. Following the extended execution of Joseph Clark, which took close to 90 minutes due to scarred veins from drug use, the state announced it would make several key changes to how it handled lethal injections, designed to prevent any extended execution process in the future. That these changes were in place for Newton’s execution continues to raise the question of whether or not lethal injection can ever be the swift and painless death it was originally advertised as being.

-Kelly Hills

Originally posted on the American Journal of Bioethics Editors Blog.